Friday, January 28, 2011

Email Interaction Between Sisters

As my sister gets ready for her mastectomy with DIEP reconstruction by trying to gain weight in her tummy area, she texted me and asked if I could send an update of what my breasts look like at this point.  Apparently, her plastic surgeon wants to look at my nipples and see how they are healing.  I never asked "why?" and of course, I am still curious as to why her PS wanted to see them.  Is it a competitive thing????   Is it a Philly vs. Miami Plastic Surgeon war???


Since I completely blew it the last time and randomly texted the pictures of my boobs to an unknown phone nunmber in Miami, I told her I was going to send her the pictures via email this time.  However, those pictures will be headless and must be deleted off the hard drive afterwards- pinkie promise!  I thought you might get a kick out of our email conversation since exchange of sister's boobs are not the norm:


Arlene: Do you have a picture of mom so that I can put it pn my "page"?  I am going to
participate in the Susan Komen 3-Day Breast cancer walk in October and I am going to dedicate it to mom, Aunt Gerry, you and me.  If you have a picture of you, me and mom, that would be even better!


Sister:  Which walk are you doing? My friend does it every year - this year she's going
to Seattle. I have pictures, but I don't have time to scan it - or even pee, or eat. It's insane. Between work and sports and running for tests and Dr's - everyone has to give me clearance - pulmonologists, then physical, redoing ultrasound - I don't know how people are supposed to work with preparing for
surgery. Thank God I have a GA. I promise I will scan it when I can. I will. Really. Let me know the date and place. It's awesome.I'm also starting a pre op curriculum for patients with another professor who just went through it - same 2 surgeons, same procedures, everything. How's your healing? How do your nipples look? My doc wants to see a pic  -- i see him on Fri. Any chance you can email it?


Arlene:   I am doing the 3-Day Susan G Komen in October in Atlanta.  Traci has been bugging me to do it so I thought this would be a good year.  Here is the link without all the pictures on
it.  Do you think you could be the first to donate some money?   Please...... I
have to raise $2300 as a minimum and I think its going to be a struggle but I am
going to try.
By the way, I am taking your picture off FB and I will take a picture of my boobies and email them when I get home.
 
 
Arlene:  (Pictires were taken and emailed with this message)  Trust me...they look really big but they are about a B right now.  Remember ...these are not the implants.  I am only up to 280 cc filled so far with the goal of only 310 cc.
 
 
Sister:   I got them and looked at them - which is really not a normal thing, but hey - nothing about this is normal!  I am going to have the exact same scar as you but no aerola (which I will tattooed on later). Wow! You got some big ta tas! I think you will be bigger than me when all is said and done - there is no way I can eat my way to Cs - I feel so friggin' gross! I weigh more than I did when I was pregnant. Its disgusting. I'll be good with the Bs!  I'll show the pics to him on Monday.  I'll let you know what he says. thanks!



Wednesday, January 26, 2011

I Am Taking on Another Challenge....

Since this year has been filled with challenges thus far, I have taken on an additional one. On October 21-23, I'll be walking 60 miles over the course of three days, camping out at night with thousands of other women and men taking this journey with me.
 
It's for an event called the Susan G. Komen 3-Day for the Cure. Net proceeds from the Komen 3-Day for the Cure are invested in breast cancer research and community programs. Komen for the Cure® works hard to build a future without breast cancer, and I plan on raising $2300 to help bring us closer to that goal.
 
It seems appropriate that 2011 is the year that I want to participate.  I was asked in 2009 to do this but I felt awkward asking people for money in such a horrendous economy.  I know the economy has not gotten that much better but I believe that there comes a time when the good needs to override the bad.  If every one felt like I did in 2009, there would be no fund-raising to continue the research desperately needed to curtail this awful disease.  One in eight women in the U.S. will be diagnosed with breast cancer in her lifetime. That's why I'm walking in the 3-Day for the Cure. 
 
Please consider making a donation.  I would appreciate any amount since I have to raise a minimum of $2300 to participate.
 
Just follow the link below to visit my personal fundraising Web page and make a donation. If you don't want to donate online, please download and print a donation form from my Web page and mail it to the address on the form. Or you can call 800-996-3DAY to donate over the phone. I would like to reach my fundraising goal by September 1.  Thank you for your support.
 
 
 
P.S. Don't wait - donate today!

Monday, January 24, 2011

DIEP procedure

As I had mentioned many posts before, my sister, ironically, was diagnosed with DCIS two weeks before I had my mastectomy.  Although LCIS (Lobular Carcinoma In-situ) is a grey area of breast cancer, DCIS is definitely breast cancer.  With LCIS, both breasts are of concern while DCIS (Ductal Carcinoma In-situ) is usually limited to the breast from which it was diagnosed.  My sister is choosing to have a bi-lateral mastectomy with DIEP reconstruction which is completely different from my bi-lateral mastectomy with silicone implant reconstruction.  She does not like the idea of having a silicone implant in her body so she has taken her time to research and has found that DIEP is the procedure that she wants to pursue.  As she researched the procedure, so did I since I was only aware of the Tram-Flap reconstruction.  I have since found out about Lat Flap reconstruction as well.DIEP reconstruction is a rather intriguing procedure in that it takes tissue and fat from your stomach area but not muscle as in the Tram Flap procedure.  According to About.com,  it gets its name from the deep inferior epigastric perforator artery.  It is similar to a tummy tuck so there has to be enough fat and tissue in the abdominal area to be moved although an implant could be placed in position to increase the size of the "breast" created.  I would not be a candidate for this since I do not have enough fat in my tummy area HOWEVER, if it were to come from my ass...different story.The positives of this surgery is that the new "breast" can be formed right away after the mastctomy so these tissue expanders are not necessary; in addition, a tummy tuck will occur by proxy and there is less pain and a faster recovery time than a Tram Flap procedure.  The negatives are that there needs to be fat in that area to use for the reconstruction. Also, compared to the TE/implant reconstruction that I am undergoing, there is a longer time in surgery and a longer recovery time in the hospital and there will be two scars afterwards.  Since  DIEP flap is microsurgery, it requires extensive training and experience in addition to special facilities and surgical tools. The sutures used to reconnect the blood vessels are about the same diameter as a strand of hair. The surgical team will use a high-power microscope to perform the most critical part of this procedure which is reconnecting the blood vessels. 

The Lat Flap reconstruction gets its name from the latissimus dorsi muscle which is located in your back.  Similar to the Tram Flap in that it uses muscle and tissue, the difference is that the Lat Flap takes it from the back rather than the stomach area to create the breast right after the mastectomy.  According to About.com,  an ellipse of skin and the latissimus dorsi muscle will be tunneled from the upper back to the mastectomy area to create the "breast".  A small implant may be needed in addition.  The positives include less complications in the lower abdominal area as compared to the Tram Flap but there could be loss of mobility/strength in the back area which requires physical therapy.  It is also microsurgery and requires a specialized surgical team and facilities for the operation.  The recovery time is similar to the DIEP procedure which is about 4 to 6 days in the hospital and about six weeks of recovery time afterwards.

I watched videos of both procedures and it was fascinating.  If there is interest, Google "Beth Israel DIEP video" but I cannot remember the site for Lat Flap procedure.  Sorry.  If I remember it, I will revise this.  My sister's surgery is February 18th so I will keep you updated.  Meanwhile, I am slowly exercising which has led to a one pound loss.  Whoo Hoo!  

Thursday, January 20, 2011

New Exchange Date

After practically begging my nurse at the plastic surgeon's office, I got my exchange date moved up one week to March 9th.  I am one week closer to getting my life back!  Yeah!  Do you think it helped that I called her an angel after she moved the date for me? :)

Wednesday, January 19, 2011

Holding Pattern

I still won't have my next expansion until February 14th so I am basically like an airplane in a holding pattern.  The tissue expanders (TE) are annoying as hell and, hard as I tried, I cannot break up with Val.  I was away from her for almost a week and I was in such a burning pain that I was forced back into Val's grip of "no pain".  Bob keeps insisting that she is there for a reason but I am fighting hard against her because I just hate putting drugs into my body.


Yesterday, I went and had my hair "touched up" and, let me tell you, that was certainly an experience.  Since I just moved to Bluffton near Hilton Head island, I sought out a salon that used Framesi products because I have used them since I was 26 years old.  I found this one place on Hilton Head and I was a little apprehensive about going there.  It was called Rhea's and the sound of her voice on the phone made me nervous enough.  She sounded like an aged smoker and I envisioned the salon full of stationary hair dryers and bins full of those plastic rollars used in permanents that my grandmother used to get monthly.  In fact, my mom got them too in the 1970's!


I was running a little late so I tried to call her but the message said that the number had been disconnected.  Hmmmmm........first clue.   Needless to say, I was dead on!  When I saw the older, coiffed lady leaving with her newly teased curly permanent before I walked in, I knew I was in trouble.  The "decor" was done in 1985 "tiki hut" and it seemed that Rhea was the only one that worked there.  Her attire consisted of a baseball hat, cropped pants with sandals......and it was 40 degrees outside.  I called in my "formula" beforehand so that this should have been the easiest appointment ever.  After the color was applied, she asked for me to sit under one of the stationary hair dryers.  Really?  I think I was 22 when I was asked to sit under a hair dryer.....which was about 1987.  While I was "under", I heard yelling and such in the background while the hot air was bearing down on my head.  It seems that the phone was turned off by the phone company.  Hmmm....not a good business strategy.  I would think a phone to schedule appointments is a necessity to a salon.  When I came back to the chair, I suggested to her that they reroute the phone calls to her cell phone while they figured out what the "ptoblem" was with the phone company.  Her reply was "Absolutely not!  I am going down and giving them hell and I don't care if I don't have a phone for a few days."  Again..I say "Hmmmm."


In any case, she started to dry my hair and I noticed that the roots were a tad bit lighter.  I started to panic.  "Um Rhea....did you follow the formula I gave you?"  Her reply was "Absolutely!  1/2 this and 1/2 that."  I reached into my handbag to retrieve the formula and, lo and behold, it was not 1/2 this and 1/2 that BUT 1/2 this and 1/4 THAT.  Oh no!  I almost wanted to tear up.  I know I donated my hair and I do feel good about that but, this time, I miss it.  I think it's because I don't feel healthy and it shows in my hair.  NOW.....I have a different color near my scalp.  Lovely!  I paid her the riduculous sum of $135 and I couldn't get out of there fast enough! 


When I came back home, I immediately called a bunch of salons in Savannah which is 20 minutes away and was given the number to the local hair product distributor.  She gave me the number to a salon in Savannah that uses Framesi.  They already made me feel at ease after I explained what had just happened and said that they could correct it on my visit next month.   Ahhhh...I felt so much more at ease.  SO much, in fact, that I popped a few Advil and a few hours later, I was actually  up for going out to the Inn at Palmetto Bluff which is on the property.  Even though the color isn't perfect,  I hated to waste the blow dry by sitting at home and watching TV.  My husband was so ecstatic that I wanted to grab a drink at the Inn close by that the day ended up turning around.

Friday, January 14, 2011

Are You Serious?

Yesterday, I decided to go to the gym on-site in our new South Carolina community.  It is gorgeous.  I noticed that there was a Precor Stationary bike that allows your torso to remain still and not have to rely on weight pressing down on my arms.  I thought I should try it out since I haven't done any physical activity for one full month.  I got dressed in my workout attire and drove over to the gym since it was still too cold to walk there.  I know, I know...wimp comes to mind since I just moved from the northeast to the southeast but, still, it was 30 degrees and I was a little trepid since I did not know how I was going to feel afterwards.I decided to step on the scale in the ladies locker room.  Now, keep in mind, I knew I had gained some weight within the last month since my pants were snug around the thighs but that would normally be the case since I haven't exercised for a full month.  After I had pulled off as much as I could to get that number down to the lowest it could be, I stood there stunned and almost in tears.  I was the heaviest I ever was since the "Freshman 15" a mere twenty-five years ago!  I gained 6 pounds in one month.  Seriously?!  How can that be?  I was doing Boot Camp on the steps of the Art Museum only two months ago and was in the best shape I had been since I used a personal trainer.  UGH!  Maybe it was the saline?  I mean, that IS water, right?  It had to be!  Please God, tell me, it just had to be the extra water weight...please.


So now, I got my fat ass on the bicycle and did 30 minutes.  I felt that I did not want to jeopardize the healing so I would have to only do a little in the very beginning.  In addition, I did not want to hurt myself in the process.  While I was on the bike, I thought about the weight gain and decided that I just had to send an email immediately when I got back to the house to the nurse at the plastic surgeon's office to see if, perhaps, this really was the case.  I will interject, at his point, that I have always been neurotic about my weight since I was a child.  I know I am not overweight but, in my eyes, I consider my weight like an tachometer that shows the RPMs on a car.  I know where my RED ZONE is and I was there!
My email to Lisa (nurse):
Hi Lisa,
I am adjusting slowly to South Carolina.  I am also improving significantly.  So much, in fact, that I rode the stationary bike that does not put any pressure on my torso which will not strain the muscles in the breast area.  I was shocked a bit by gaining 6 pounds but I have a question about the weight gain.  I know I probably put on a little bit but I was wondering if you could see how much saline in in the expanders and does it add weight since it is water based compared to a barely size A breast that I had previously.  Also, shouldn't silicone weigh less than saline implants?  I know I sound neurotic but this is the heaviest I have ever weighed in my life and I am just trying to understand the reasons as to "why" that is so.  Thank you.
And her response was:
Arlene, I am glad that you are adjusting to SC. As far as weight gain, it is not atypical for any
surgical patient to gain a few pounds either fluid shift related or lack of activity. I am sorry to tell you that the expands don’t weigh all that much…at most a pound. Yes silicone is lighter so there is a rainbow of good news!
Best wishes
Lisa
 

Monday, January 10, 2011

One Month Marker

Today will be exactly one month since my mastectomy.  To the women that must undergo this procedure, I wanted to point out a few observations.  To begin with, be prepared to go through a wide range of emotions- from elation to depression.  I have been told that it is largely due to the amount of medications that are needed from anethesia to the everyday medications.  After the first week of hanging around in my fleece "outfit", I would get up, make coffee, take a shower, get dressed and try to particiapte throughout a normal day; this includes a little walk, some chores and communicating with friends and others.  Keep in mind that you are not a super human being.  Your body is still healing so if there is a day when you need a nap or if you need to stay in your pj's, do it....but try not to make it a habit.  It is better for your psyche if you get back into the swing of things.


Yesterday was that day for me.  I stayed in my fleece outfit all day and slowly organized my closets, napped and watched movies.   Since I am officially off all valium, I wonder if my body is going through a withdrawal since those pills are "downers".  My plan is to just use ibuprofen until the next surgery.  The slight depression could also be from moving to a brand new environment and not being able to actively participate in meeting new people ....and missing my friends and family from California and Philadelphia.  In addition, I also feel like I have a large piece of metal surrounding my chest and it is an odd sensation.  Whatever the case may be, I am acknowledging it and just moving forward by keeping a positive outlook.  In my case, I elected this surgery.  There are many others, including my own sister, that will not only have to go through the mastectomy but, in addition, add chemotherapy to the mix.  Just remember, your body is amazing and will heal.  It just takes time.

Saturday, January 8, 2011

An Analogy

On December 4th, I had my third expansion.  Since the last expansion is going to be on February 14, Dr. Bucky "went for it."  The closest comparison that I can give to what this now feels like is a basketball that was semi-inflated prior to full inflation.  You've got your air pump in hand and you start feeling around for the little valve to hook up the metal pin and then.........push down hard on the pump with air so that the ball is fully hard and firm.  Now imagine the basketball is my boob and the air is saline and, well, there you have it.


Now remember, we had the movers all day on January 3rd moving all the furniture into storage and putting the boxes of clothes, important papers and valuables into a 15 foot cargo van similar to the one I used to have at California Carpet.  The van was stacked to the brim with our "stuff'".  So much, in fact, that Bob had to use the van's passenger seat which meant that both I and Nikita (our cat) had to ride in our smaller SUV with my brother and sister-in-law.  My brother helped us out by driving down after my expansion so that he and his wife could drive the van back to Philadelphia to drop it off.


As most of you women know, there is no way on God's green earth that you can possibly sit back and not delegate or assist in any way while strangers are moving items in and out of your home.  Needless to say, I tried really hard to not participate but the micro-manager in me, which had been buried deep down inside of me since we sold the company, reared its ugly head.  By the end of the day, I was a bit sore but I still had not done the expansion which was to occur the next day.  I relaxed at my brother's home while Bob decided to start the 12 hour trek to South Carolina in the van.


Tuesday.  We are loaded into the SUV like the Clampett's from The Beverly Hillbillies; I am in the back seat next to my cat in her bright pink cage who, by the way, is drooling since she gets car sick, with the litter box behind me and suitcases packed in like a puzzle,  My brother and sister-in-law, Mary, are in the front seats with any available space being used to store laptops or handbags.  Now I know why Jed Clampett had to put grandma on the roof in her rocking chair!  I get my expansion, take some valium and ibuprofen  and off we go to drive a good 8 hours for the first day.  All I can say is UGH (in capital letters).  Holy cow!  Val was not doing her job but I just sucked it up as best as I could so that I wouldn't get thrown up on the roof like grandma due to constant complaining in the back seat.  There is nothing worse than a whiner for that many hours; a drooling cat is bad enough!


We diverted to Jacksonville, NC to see my nephew, a captain in the Marines, who is off to Iraq next week to work in Baghdad near the embassy.  Since most hotels are not pet friendly, we had to sneak Nikita in under my coat through the back staircase as well as set up her litter box.  As we were walking out the door to have dinner with my nephew, there was this wailing "mmmeeeeeooooowww" heard trailing down the hallway.  Okay, nice try.  That obviously was not going to work,  Since I still was not feeling that great, I stayed behind with Nikita while my brother and Mary met their son and his friend for dinner.  Trust me, I popped another valium and two more ibuprofen and zoned out to the Biggest Loser while Nikita nestled up next to me on the bed.


It took another 5 hours to get to Bluffton, South Carolina the next day and, although I still felt like crap, Nikita had figured out that sleeping makes the car sickness disappear.  She was out cold for all five hours!  When we arrived, my husband had already unloaded the van and, since the house was already furnished, he had placed the boxes and bags in the appropriate rooms for me and my OCD to eventually organize and fold and color flow all the clothes and towels.  I know...everyone has their own issues and mine happens to be neatness via color coordination, hangers going all the same direction and perfectly folded sheets and towels.  Although the heavily inflated boob pain was slightly subsiding, I knew that I could not live too long among chaos and started in on the task at hand.


We are now fairly settled in and my brother and sister-in-law left this morning to drive back to Philadelphia.  I heard they will be having snow in that region which makes me happy that I left to a sunny 57 degree temperature but slightly nervous for my brother driving an empty van on icy, snow covered streets.  I am still in quite a bit of discomfort but nothing so bad that I cannot manage.  In fact, I deserted Val for the past two days but then I overdid it yesterday and had her revisit me last night.  I did want to add that on Thursday, I went to a lymphatic drainage massage specialist in Savannah that I interviewed over the phone.  The method that she used, LDT (Lymph Drainage Therapy), was developed by Dr. Bruno Chikly who was a student of Dr. Vodder.  The main difference between the two, as I have observed, is that the Vodder Method uses longer strokes while LDT therapists use flat hands to simulate wave-like motions.  The thought being to map out the body to initiate circulation of the lymphatic fluid.  Personally, I liked the Vodder method better in terms of pain reduction but I have to say that LDT released more fluid so that (how can I put this nicely?) I immediately had to go to the bathroom twice within a half hour.  I highly recommend lymphatic drainage techniques to those undergoing this surgery or any other type of surgery.  I will be undergoing this half hour massage every week until after the final surgery which will take place on March 16.

Saturday, January 1, 2011

Happy New Year!

I hope everyone had an eventful New Year's Eve.  I would love to say that I went out and partied like there was no tomorrow but, alas, I was "snugged" out in my fleece robe and pants with my blankie watching 8 episodes of LOST from Netflix till 1:00 am.  Okay...I promise to everyone reading this that New Year's 2012, I will be wearing a low cut neckline showcasing my fabulous new boobies and my strong and toned body!  THAT, my friends, is my 2011 resolution.  Hmmmm....okay a bit too shallow.....let's add in a daily excerpt read each day from a book of Inspirations for Women that my good friend gave to me for attitude adjustment (if needed).
I wanted to celebrate the life of my Aunt Gerry in this next paragraph.  Yesterday, she died with her family all around her after suffering from lung cancer which metastasized from breast cancer.  I believe she was diagnosed in her late 60's and went through extensive chemotherapy and she was cancer-free for years.  Unfortunately, it came back many years later as lung cancer.  She was a teacher for years, just like my mom, and was an extremely strong and opinionated woman.  My husband insists it's because my father's mother's side of the family was from Calabria, Italy which is located at the "toe" of the Italian peninsula.  The Calabrese are known for "aruging with a stump".  Stubborn but passionate.  I just love that!  Rest in peace Geraldine Nardiello Theisen.